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Running with Danny, Inc. was founded in January 2012, but the story begins way before that….
Danny Quesada was born with Cystic Fibrosis (cf) on November 4, 2000. Cystic fibrosis (cf) is a genetic disease affecting the lungs and digestive system. The disease causes abnormally thick mucus, which results in frequent life-threatening respiratory infections and continued hospitalizations. The disease attacks the lungs scarring them with each infection, and the scarring is permanent. There is no reversal of the effects. There is no cure and life expectancy is in the mid to late 30’s.
Danny was diagnosed at 13 months old and immediately our family began to work with the Cystic Fibrosis Foundation to raise funds and awareness towards a cure. In the third grade, Danny began to run cross country with his school, in April of 2011, during the Miami Lakes Great Strides walk to benefit the Cystic Fibrosis Foundation, Danny wanted to run the course. We asked the participants, “Who wants to run with Danny?”. On that day, Running with Danny was born. We have used this platform to raise awareness and funds for medical research to find a cure for this disease. We have a strong presence on social media and have held several 5K events.
As Danny’s disease progressed, the need for a Double Lung transplant became evident. In March of 2019, Danny was listed for the transplant, while on the list, waiting for lungs, he developed pneumonia and was admitted into the hospital in late August. Danny passed away on September 25th from the complications of the pneumonia and cf.
In memory of Danny and to continue His Legacy, we will continue the fight we started to end this horrific disease. We will also be working to change the way patients with cystic fibrosis are listed for transplant, as well as promote organ donations.
Running with Danny
Stay tuned for upcoming Running with Danny events.
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Get Educated
Cystic Fibrosis is a genetic disease affecting the lungs and digestive system. Both parents must carry the defective CFTR gene and the child must inherit both genes to have the disease. Carriers are not affected by this gene in any way, it is estimated that 1 in 28 people carry this gene. The current CF population in the United Sates is approx. 32,000. The defective CF gene contains a slight abnormality called a mutation. There are more than 1,700 known mutations of the disease.
The CFTR gene causes the CFTR protein to become dysfunctional. Without this protein, abnormally thick mucus will stick to the cell walls of various organs. This results in frequent life-threatening respiratory infections and continued hospitalizations. The disease attacks the lungs scarring them each time with different bacteria and the scarring is permanent. There have been 4 huge medical breakthroughs in the treatment of this disease in the last 5 years. The FDA approved CFTR modulators for most of the known mutations which has improved the quality of life for some.
People with CF can have a variety of symptoms, including:
- Very salty-tasting skin
- Persistent coughing, at times with phlegm
- Frequent lung infections including pneumonia or bronchitis
- Wheezing or shortness of breath
- Poor growth or weight gain despite a good appetite
- Frequent greasy, bulky stools or difficulty with bowel movements
- Life Expectancy is in the mid to late 30’s
Please visit the Cystic Fibrosis Foundation page to learn more about the disease and different ways to get involved.
- Very salty-tasting skin
- Persistent coughing, at times with phlegm
- Frequent lung infections including pneumonia or bronchitis
- Wheezing or shortness of breath
- Poor growth or weight gain despite a good appetite
- Frequent greasy, bulky stools or difficulty with bowel movements
- Life Expectancy is in the mid to late 30’s
Please visit the Cystic Fibrosis Foundation page to learn more about the disease and different ways to get involved.
Oil Change
Change your oil at specified intervals can save you money on repairs down the road.
Tire Rotation
Rotating your tires will help even out the wear so that they last longer. We recommend that you get them rotated each 5,000 miles.
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